My son after GBS

I am writing this post more for parents whose children have/had Guillain-Barré syndrome, or GBS for short. Since this disease is rare and information is scarce, I know how hard it is to find first hand information out there. I also know that there are some who post in forums and search engine sites but if you're like me who doesn't fancy reading exchanges through forums, then this post is for you.

To give you an overview, here are my boys details:

>He had his MMR booster/vaccination on June 13, 2014. He was 1.1 years old at that time

(After that, I cannot remember exact dates but here's what happened)

>He developed cough and flu like symptoms on June 16 after we went swimming in the river

>We did self-medication of anti-biotics on June 22 due to on-off fever of 38-39 degrees

>His fever stopped but his physical condition got worse after that and by June 26, he was much much weaker and couldnt stand up

>The first pedia misdiagnosed it as dehydration and we started on fluids on June 26 but since he wasnt getting better, we brought him to another doctor on June 30

>He was confined on June 30 and diagnosed with GBS on July 1

>We started with IV IG on the night of July 2 and stopped on July 6

>He was discharged on July 8 and did Physical Rehabilitation until September 2014(3 months)

>He was able to walk again in October 2014

The first day he was able to walk again ^_^

Here are info that I still remember from our hospitalization

> My son vomitted on the last night of the IV IG procedure. Doctors said it is not a normal response to the IG so they deemed it safe to continue the intake. He also vomitted the day after that and though the doctors think it might be caused by overfeeding, I think it was due to high blood pressure because at that time, my son's bp was ranging from 110-120/80, pretty high numbers for a toddler. IV IG causes high blood pressure since its basically concentrated form of blood/anti-bodies.

> Doctors told us that he will be able to walk approximately 6 months to a year after he was discharged though he was able to do it in 3 months. They say that GBS progresses more quickly in younger patients but the good side is, since their bodies have not been exposed to "damage" from unhealthy food, alcohol, etc., they also recover more quickly, which was the case for him since he had it so young. We take this as a big blessing from God because I have watched videos of GBS patients in hospitals who were bedridden for MONTHS.

Life Two Years after GBS

Now, our son is up and about and people who never knew his illness wouldnt know that he had to face such a condition. However, we believe that his body has not "fully recovered" from the trauma of the disease because

1. In those 3 months that he was unable to walk, we view it as a recuperating process, meaning that when he was able to walk in October, he was back to his old self in June. Thus, we technically lost about 6 months in development since he was not able to move forward for 4 months and because he was still recuperating as time went by, his over all development only continued a few months after he was able to walk again. Thus, when I look at my boy who is 2 years and 11 months old, I believe his over-all development is closer to that of a 2 year and 6 month old boy, given that he was able to catch up a bit from the delay. His peers are much taller than him and are able to talk more. However, I believe the situation also enabled him to develop his socio-emotional skills better- because he understands sharing, time outs, saying sorry and remorse, as well as pretend play(which I normally saw in 3 and 4 year olds when I was a teacher).

2. It is hard to look for scientific evidence for it but I think trauma caused him to be delayed in speech and other areas of development. I am constantly looking for mothers' accounts that say that after a traumatic experience, their child seemed unwilling to try to talk. GBS was traumatic for our son in 2 accounts- he understands the medical staff's work and fears all of them from doctors to nurses to medical technician and he remembers the experience of being unable to walk during and after the sickness. At present, our son would only talk a few words- family members, a few animals, food he likes and for the rest, rely on gestures to express himself.

Such a water baby! A video at the beach of informal speech practice

3. Be wary of some doctors, because not all are genuinely interested to help you. 

Given the rarity of the disease, curiosity and technicality gets the better of some doctors, and to date we experienced 4 doctors. 1) During our hospitalization, we encountered a doctor who rated my son's physical movement as 0(I believe on a scale of 1/5) and it was really really upsetting, seeing my son exert effort to move his legs. 2) A different one, a resident(who I believe has not encountered a pediatric GBS case before) asked me over and over again information about his history, information she would been able to see on the chart.

Afterwards, it was extra hard to find pediatricians that we trust and believe can cure our son's sickness unrelated to GBS. 3) One profusely argued with me about the connection of vaccines and the syndrome. 4) Another treated my son like a fragile glass and concluded that he is ultra-sensitive and thus prohibited from getting sunlight, eating chocolates and doing anything else that might be dangerous or cause allergies. She even advised us to lessen salt in our dishes, which as far-fetched as it may sound, seem to come from her desire for me to lose weight given that I'm overweight and had nothing to do with my son. It took a while of trials and errors before we were able to find the perfect fit, a doctor that we trusted to truly be able to cure him for other diseases and illnesses. 

I'll end this note by saying that experiencing GBS was one of the hardest yet meaningful experiences my husband and I had as parents. It's one of those things that you wish came with a manual but at the same time brought out the best in us, and show us that other than what we have previously done, we are capable of more love as parents. 

If there are other things you wish to discuss or simply want to talk to somebody about the experience, feel free to drop me a line!

Cheers!

Independence & letting our children go

Last night, Reese slept on a bed on his own. Technically, his "bed" was right next to ours, he still climbed to ours when he asked for milk but from any perspective, he slept by himself.

Excited about this new arrangement!

The pretend play started a few days back, when he would get a mat(meant for the sofa), lie on it and close his eyes. Last night, however, hubby prodded and prodded him but the boy simply smiled at us, showing that he really means to sleep there. Worried that it might be too cold and hard for him, we created a space for him with all his pillows. He was so happy and when I tried to overdo it by adding a comforter, he said "Hindi", meaning "no, the mat and the pillows are enough".

Last night was a gentle reminder that I aim to be a parent that allows my son to experience things, far from my teenage years of lying my way through "firsts", because my mom wouldn't let me experience them if I asked permission. Lying to watch a concert for the first time. Lying about an out of town because I was travelling with my boyfriend. It was quite a blow as an adult, a woman with a job who still feels the need to lie to her mother for fear of being reprimanded. It was a reminder that unlike what I did to my mom, I prefer to know my son's decisions because in the end, I'd wish to know where he is even if I think the activity is too dangerous, far away,  or expensive- because it is part of letting them make their own mistakes.

  It was an eye opener, a gentle reminder that our children are not our own. Parents are here to guide them, raise them and educate them, but we have to let them go, let them be the individuals that they are meant to be, regardless if  we are ready to do so or not.

Nag-pose pa talaga!

I got teary eyed because my boy is still stuck at one word sentences( his age is expected to be able to carry 2-3 word sentences at a time), and here he is, wanting to sleep by himself. Today, it's about the bed and a few months from now, it might be something else. That's the thing with being a mom. The concern changes but the feeling doesn't- a mother will always care. It never gets easier-it's just an ever morphing ride of caring about something else that affects your child

So today, I lock away the mom who wants to protect her child from every little thing and prod the one who's willing to let her son be independent.

Under The Sea Party @ Three

The stage mother is back!!! Hehehe. Our darling Reese will turn three in May, and of course, three months into the date, ze stage mother (aka: ME), had a Eureka moment and decided that the theme will be, yes, UNDER THE SEA.

Our boy is such a water baby that at this point, he only had two ways to look post swimming:

1) You're-the-meanest-parent-ever-for-asking-me-to-stop-swimming 

(IF we ask him to stop swimming at the right time)

OR

2) I-don't-feel-cold-I'm-still-okay-don't-mind-me 

(IF we wait for that wrinkly-palm moment when his teeth start to chatter from the cold)

Hence, it was suppah easy to pick this theme because it fits our boy annnndd and goes along the usual shades of blue. Why Blue? Because even if I am gender-sensitive and all, most products for boys(from clothes to party favors to rash gards, almost every freakin' thing) are blue, so this makes my life hella easier.

Since this is a party in the making, can't show you my own pics yet, but here's a mix of pics I found online if you're interested in the same theme.

I can just see myself rockin' those fish cut outs! The original picture came from 
http://karaspartyideas.com/2013/08/under-the-sea-water-party.html

Such Cute Food Toppers! 

I'm not completely sold on the sand-pail thing but I like the contrast of blue and orange

It won't be complete without the personalized lootbags!!!

Not an octopus but a starfish, perhaps? Hehehe

Might replace that big annoying figurine of Spongebob but other than that, this looks perfect!
(Goldilocks)

I'll be back with updates on the toppers and all once I'm done and a thought bubble comes along. Ciao!!!

View Park Hotel Tagaytay

This is a long, long, long overdue post from our check-in at the hotel 5 months ago(did I say long)? Hahahaha....Anyways, now that I've left that mind draining work in Eastwood, my brain is "functional" again to do fun, creative, fell-good thingies like blogging!

So... what led us here?

The hubby and I celebrated our tenth year of being together(which, by present standards is like a century given that people break up before they can say third monthsary), and I think it called for a more-than the usual celeb, hence Tagaytay!

For staycation and the likes, I have three qualifications: Buffet Breakfast Included, Pool, Internet. Breakfast- because, come on, what's the point of staying in a hotel if I'm expected to pay extra for it, worse go outside to have a fill? Pool, because if I'm shelling out a few thousand bucks to sleep overnight, I gotta get some water fun with my boys. Internet- because in this day and age, no connectivity for a hotel is unacceptable. View Park met all three and the price was really pocket-friendly so it was a no-brainer to pick it among other hotels in Tagaytay.

If coming from the Sta. Rosa-Tagaytay Road, turn left and go straight for about a kilometer or so. It's on the left side almost across Picnic Grove, so you'd hardly miss it.

We got a Standard Room which was a steal at 2400ish. sorry, cant remember. It was petite but for our small party of three, it was enough. Check-in Process was breezy and in no time, we were led to our room and since we came from Manila, we napped for a bit before swimming.

This was just about the whole Standard Room. ItBorlogs kung borlogs ang boylets ko!

CR was squeaky clean

Standard toiletries. They also provided shampoo and conditioner but I failed to take pics

We didnt have our own pics of the pool and this is from the hotel's website. The pool was small though I doubt if making it bigger would have mattered- it was cold and I think Reese and I only dipped for less than an hour. Hubby just shrugged that it was too cold and watched us from the side.

From the hotel's Agoda website

We needed to be back in Manila before lunch so it nice that they serve breakfast at 6 or 7, I think. Not too many choices but food tasted okay, hindi tinipid, so twas fine with me.

The buffet stubs felt like raffle tickets. lols

Not too many choices but as long as my scrambled eggs are fluffy, I'm good :)

Family pic before Reese rushed to roam around the area

 All in all, I liked our quick vacay in View Park. The hotel actually looks nice from the outside and can be a location from simple photoshoots, if you're aiming for this kinda Italian vibe/look.

Also from the hotel's Agoda website. I imagined myself making emotera poses here :P

Here's a quick review of things to consider:

Pros:

>Mid-range accommodation in Tagaytay that includes breakfast

>Super accommodating staff

>Cold aircon- Kinda stopped us from sleeping soundly kasi sobrang lamig but if you prefer a very cold room, I think this is a plus

Cons:

>Faaaaar from the Sky Ranch-Taal Vista, Bag of Beans everything else area. We went to Mahogany Market to buy dinner and it took us a while to get back(traffic na)

>There's a view in the parking area na "slum area" ung feel. I think its from the adjacent property but still felt like they can do something about it.

Ansayaaaaa! Hopefully it doesnt take ages for me to make the next post. Ciao!!!

What your HR officer wont tell you

MY BLOG IS ALIVE!

GOD, JUST FELT SO GOOD TO WRITE AGAIN.

Not smart, but I just had to :)

I am about to leave this company where I'm currently working at and it is bittersweet that I will do it because this has been my third HR stint and probably my last, because I am shifting into a new field in a couple of months. Just like any other relationship, working here and in my previous HR jobs has had many ups and downs but the definite, irrevocable, big time up is how much I've learned. So before I leave to venture off into another world of my career I am not yet sure of, I decided to write a post that pays homage to the three biggest gems of knowledge I have gained so far.

*Disclaimer: I came up with this on my own, it's your call to believe a thing or two that I say.

1. Employees live for the moment, Employers look at the bigger picture.

You can give employees full board meals, top of the line HMO, unlimited coffee, a gazillion leave credits but the moment they get a memo, they will probably talk back. As a former General Manager I knew said, you cannot teach people how to feel. Hence, as with any other relationship, some people are not able to bounce back from a tragedy or bad moment, so even if they've like their job so far, if they can risk losing the job or being a bad apple, they will do it.

Employers, on the other hand, look at employees as a puzzle piece and how you affect or will affect the company and everybody else as a whole. You can be a total ass but if the boss feels like you generate a lot more money than your peers, he's more likely to keep you. Another example is that, you can say that a Christmas basket costs only a hundred bucks but multiply that to a hundred employees and it's a small fortune.

LESSON: As an employee, don't make decisions when you're upset and always work the extra mile because though you don't feel like it, your boss sees that. 

2. Employment is all about gain versus loss.

My boss phrases it as rubber band- it's all about which pulls you more. Whether you're an employer or an employee, your decision gravitate toward your priorities, whether you realize it or not.

Funny thing is, from an employee's perspective, I believe that even though we work, the actual work we do has very little to do with our sense of fulfillment about doing it and has more to do with the intricate and complex things surrounding it such as the salary, the people we work with, etc, etc. In that case, that intricate mix, I believe has more to do with our stay in a job.

In my case, for example, I taught for a year but didnt really enjoy it because of 1)the salary and 2)the horrible, horrible boss I had. I mean the kind that makes you rethink going to work every.freaking.day. So even though I liked my kids, I decided to leave. 

3. In as much as Employees market themselves, Employers market themselves too.

If you apply in a company wherein their comfort room stinks or the receiving area is very very dim, or you saw an employee blatantly opening NSFW websites, run the first chance you get.

As an applicant, your thinking is that there are a dozen other applicants vying for the same position as you so you play your A game and bring everything to the table.Right?

However, hasn't it occurred to you that the Employer should be doing the same? True, you have to impress them about your credentials but in the same way, you, as the employee, are promising them a portion of your lifetime to generate income for their company and improve or contribute to the success of the business. Hence, if at the onset, the company, or any portion of it doesn't "feel right", don't be afraid to say no and look elsewhere. Because employers work on these deals without you knowing and of course not saying it point-blank, so a company that fails to impress you on your application process might not do so ever.

Hope all this chitchat was helpful one way or the other, and I hope for my own sanity, that I'll be able to blog much much sooner at shorter intervals. Ciao!

Philippine Travel Tax Exemption for infants and minors

Dunno how many people know about this but minors are discounted and infants exempted from paying Philippine travel tax. Philippine travel tax is paid by Filipino residents who wish to travel abroad and by certain Foreign nationals. 

I actually came across this fact because of hours of googling details of our upcoming Malaysia trip and hence, ways to cut back expenses. Travel tax for passengers 12 and up is 1610 and it was such a waste to pay that amount for an toddler.

I was afraid the process would take a long time so I got the certificate yesterday since the in-laws house was only a few minutes away from the airport :). I was worried over nothing because the whole thing was done in less than 5 five minutes! Took longer to walk from the parking lot to the counter! Hahaha.. So here goes:

* Minors below 2 years old are exempted from paying travel tax provided they have the certificate, which u can get at the airport.
*You can process it at the airport directly or in their head office in Makati near Makati cinema square, if you frequent that area.

* Children 2-12 pay the discounted travel tax of 800 or 810(sorry cant remember) so you still have a discount of 600 or so

*  Based on our experience last 2012 when my youngest sister was only 12, they dont tell you to process it automatically so you have to make the initiative to do it.

*Age at the time of travel is the basis for the discount. In Reese's case, since he will only be One year and 10 months by the time we use the certificate, full exemption still applies to him.

* If, like me, you're worried that it'll eat up a lot of time on your departure date, you can process it ahead of time because it's valid for a year from the time of issue, for one time use only, meaning you have to surrender it and get a new one the next time you travel.

So here's the eezy breezy process to getting the certificate( we processed it at the airport):

1. Line up in counter 1 of the Travel tax counter and give the minor's passport. They will photocopy it and it will serve as the order of payment. Proceed to counter 2.

2. Pay the certificate fee of 200. Fee is 200 per certificate, so if there is more than one person availing of the discount or exemption, cough up more. 

3.Proceed to "Counter 3" (there was no counter 3 label, just a note saying "no payment here"

4. Voila! You get your coupon to a thousand bucks savings. Hahaha

Hope this helps and I would like to commend the employees of Tourism Infrastructure and Enterprise Zone Authority for their prompt service.

Ciao and until the next bubble pops and(becomes complete), the operative word being complete since I have a ton of unfinished posts. Hehehehe.. Laters, Baby!

Gullain-Barre Syndrome and your role as parents

And the blogging backlog continues! :P

I was all set on writing an entry about all things mushy about our recent ordeal six months ago but I realized that it aint gonna help anybody but myself. Writing about mushy things would help me vent out the emotional pain I experienced while Reese was in a hospital. Meanwhile, writing about our experience on the actual disease could and might help others, so here I am, telling you about it.

I wouldn't go all technical about the disease because you can read that elsewhere from people who are more qualified to tell you about it but here are our personal notes about things that we(hubby and I) think might have played a part or symptoms regarding his disease.

1. Medical staff just refuse to give babies vaccines when they are sick but they fail to highlight that vaccines can actual make them prone to be sick.

GBS usually stems from cough and in Reese's case, we believe he had a cough because he had immunization two days before we went swimming, and the combination of the two contributed to him being sick. Sure, you can say that the fault remains with us in allowing him to swim (which we believe caused his cough) but still, I think the vaccine made his immune system weaker. So the questions linger in my mind: What if we waited in giving him the vaccine? What if we didnt let him swim too long? For now these are all what ifs, but to those of you who are only about to have their children's immunization, it can spell a world of difference.

2. Doctors are brilliant people but they are people nonetheless, so they can make mistakes and their mistakes can be graver given the nature of their work.

Reese's pedia diagnosed him to be dehydrated and we couldn't blame him- his lips were dry and chapped, he didnt have energy, his face was drooping. He recommended for Reese to do oral rehydration without requesting for a test confirming his electrolyte level. We followed his recommendation for three days and when Reese didnt improve, we were advised to go to a different hospital. Nonetheless, always be vigilant about the doctor's course of action and dont hesitate to ask if you feel like something is not right.

3. Do not second guess your instinct as a parent. Do what you feel is best for your child.
From the time that Reese's symptoms started to get worse, Arnold and I couldnt decide on what to do-whether to bring him to the doctor immediately, to wait out a few days, to self medicate and so on. After that, we promised to each other that we would never second guess again and bring him to the hospital once symptoms to any sort of disease become evident. Their symptoms worsen very quickly but in the same they also recover very fast so the best way is to diagnose diseases early so they can be addressed as soon as possible.

Like I have said time and again, Reese having had GBS was the hardest ordeal we had to go through and we wish that in as much as we can(given our limited resources), we can share our experience to ensure that fewer and fewer people will deal with this disease. We are happy to say that Reese has surpassed the doctor's projections that he will be able to walk again within 6 months-1 year after his hospitalization, because he was able to do it in four months. 

He lost a lot of weight then but he is literally back on his feet and bubblier than ever :)

I hope these bits of info help you. Please do not hesitate to contact me if you have concerns/questions.. God Bless us all!